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[Leslie <cayadopi AT yahoo.com>]

Excellent suggestion.  I have or maybe I should say had an auto-immune 
disease, 
which included some IBS symptioms,,,,  changed my diet under a weight loss 
and 
weight lifting program.... bam, all symptoms disappeared.  The inflammation 
symptoms, the lung symptoms, the IBS symptoms - all gone.

One thing, I was removed from fruit for a long time.  I don't know if that 
helped some of the problems,,,,, but recently I read an article on the 
importance of not eating fruit when other food is in the gut - it ferments - 
so 
I'm thinking time of day to eat fruit relative to other meals is important.




________________________________
From: Lynda <lurine AT com-pair.net>
To: homestead AT lists.ibiblio.org
Sent: Thu, August 19, 2010 2:10:20 AM
Subject: Re: [Homestead] Crohn's Disease

Don, we had patients at the rehab center with Chron's.  Are they doing 
anything 
about her immune system?  I know our doc was pretty insistant that getting 
the 
immune system to slow down was an immediate concern along with knowing what 
things in the diet would aggravate (raw veggies, lactose, high fiber, etc.) 
the 
condition.  He pushed for organic foods and removal of as many chemicals from 
the home/environment and food as possible.

My mother had ulcerative colitis and DH had IBS.  My mother wouldn't change 
her 
diet and she ended up having surgery 8 times.  DH no longer has any symtoms 
due 
to diet change.

Lynda, sending all kinds of positive energy to Don's d-i-l!
----- Original Message ----- From: "Don Bowen" <don.bowen AT earthlink.net>


> I am looking for links and information on Crohn's Disease?  I have done 
> some 
>research and am loooking for more first hand information.  A list member 
>emailed 
>some information several months ago and now I am looking for more.
> 
> I am currently in North Carolina, planning on leaving in the morning.  My 
>daughter in law has Crohn's and has had several nasty bouts.  They have 
>attempted to control with medicines with some success but she is getting 
>worse.  
>This last weekend she had a reaction to a treatment.  It is a very expensive 
>bi 
>monthly treatment ($8000) and was a last effort before surgery.  The 
>reaction 
>caused her heart began to fail then her lungs filled.  She was put in ICU, 
>heavily sedated and had breathing help. Early Sunday morning our son called 
>and 
>was in tears, she was given a less than 50% chance of survival.  So by mid 
>morning we were heading for Asheville.
> 
> I had spent the last two weeks in California getting my little pickup and a 
>backup generator.  I left Sunnyvale on Thursday morning heading east and 
>onto a 
>miserable trip.  I had to buy four tires, take a tow truck ride, fight with 
>the 
>spare tire carrier in deep dust, and was the second person to come upon a 
>nasty 
>accident.  All in all not a trip to repeat.  I arrived home late Saturday 
>night 
>and headed east mid Sunday morning.
> 
> She has been steadily improving all week and today they took her off 
> sedation 
>and breathing assistance.  She came around and this evening was able to talk 
>with us and may be taken out of ICU tomorrow.  Sometime in the next 7 to 10 
>days 
>she will have an operation on her Colon.
> 
> -- Don Bowen          KI6DIU
> 
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Date: Thu, 19 Aug 2010 12:06:52 -0400
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Subject: Re: [Homestead] Crohn's Disease
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Don, Crohns, as you know, is auto-immune.  I don't have Crohn's or
Celiac, but I do have RA and mine is also systemic. Many people can
manage Crohns or Celiac or RA or other auto-immune disorders with diet
or lifestyle changes but things get more complex when the disease
becomes systemic.  Her heart failiing, as you describe, and her lungs
filling, as you describe, are common complications to RA, Crohns, and
other auto-immune disorders.  The immune response just goes haywire and
over-reacts by pumping fluid into the lungs.  Very often, liver or
kidney failure or weakness complicates the medical treatment, too.  I
know that my liver is not in very good shape right now.  I had a CT scan
a few months back and quite by accident, they discovered that I have
rheumatoid lung, bunches of benign nodules in my lungs.  So far, no
interstitial damage or disease, so I am good for now.(mine also affects
my heart and eyes) I guess my point is to just be careful of advice.  It
sounds like her situation is very complex and involves multiple organ
systems.  People just don't realize that auto-immune disease has such a
high mortality mainly because organ systems are weakened or unbalanced.
Give her (and your family) my best.  Hang tough and develop that warrior
mentality.

--
EarthNSky Farm  34.498N 85.076W
SISU! (Finnish--There is no single word in English that encompasses
all that sisu means, but it combines the following ideas: guts, pep,
determination, stubbornness, perseverance, hardiness, stamina, go, do,
nerve, spunk, pluck, and grit.  It's like "Just Do It!" & "Go for It!")