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[Leslie <cayadopi AT yahoo.com>]

I am sorry to hear your daughter in law is ill with Crohn's., 

The only first hand info I have is from 30 years ago,,,, one Crohn's patient 
came in to remove a small section (about 8") of small intestine that wasn't 
functioning properly.  I do not have any idea if the surgery helped the 
patient.  If I recall correctly, that patient was on steroids (injected), and 
after years of injections, the injection sites on her arms had turned the 
flesh 
pretty hard.




________________________________
From: Don Bowen <don.bowen AT earthlink.net>
To: homestead AT lists.ibiblio.org
Sent: Wed, August 18, 2010 9:50:07 PM
Subject: [Homestead] Crohn's Disease

I am looking for links and information on Crohn's Disease?  I have done some 
research and am loooking for more first hand information.  A list member 
emailed 
some information several months ago and now I am looking for more.

I am currently in North Carolina, planning on leaving in the morning.  My 
daughter in law has Crohn's and has had several nasty bouts.  They have 
attempted to control with medicines with some success but she is getting 
worse.  
This last weekend she had a reaction to a treatment.  It is a very expensive 
bi 
monthly treatment ($8000) and was a last effort before surgery.  The reaction 
caused her heart began to fail then her lungs filled.  She was put in ICU, 
heavily sedated and had breathing help.  Early Sunday morning our son called 
and 
was in tears, she was given a less than 50% chance of survival.  So by mid 
morning we were heading for Asheville.

I had spent the last two weeks in California getting my little pickup and a 
backup generator.  I left Sunnyvale on Thursday morning heading east and onto 
a 
miserable trip.  I had to buy four tires, take a tow truck ride, fight with 
the 
spare tire carrier in deep dust, and was the second person to come upon a 
nasty 
accident.  All in all not a trip to repeat.  I arrived home late Saturday 
night 
and headed east mid Sunday morning.

She has been steadily improving all week and today they took her off sedation 
and breathing assistance.  She came around and this evening was able to talk 
with us and may be taken out of ICU tomorrow.  Sometime in the next 7 to 10 
days 
she will have an operation on her Colon.

-- Don Bowen          KI6DIU

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Don, I'm sorry to hear about your daughter-in-law and hope she continues
to improve. I lost a friend to it a few years back. I read an
interesting article a several years ago where research showed people in
developing countries, particularly those with high intestinal parasite
loads, did not get Crohn's, and scientists were experimenting with a
pill that would deliver specific parasites to the intestines of Crohn's
patients. I wonder what became of this idea. You might come across it in
an online search.

Don Bowen wrote:
> I am looking for links and information on Crohn's Disease?  I have
> done some research and am loooking for more first hand information.  A
> list member emailed some information several months ago and now I am
> looking for more.
>
> I am currently in North Carolina, planning on leaving in the morning.
> My daughter in law has Crohn's and has had several nasty bouts.  They
> have attempted to control with medicines with some success but she is
> getting worse.  This last weekend she had a reaction to a treatment.
> It is a very expensive bi monthly treatment ($8000) and was a last
> effort before surgery.  The reaction caused her heart began to fail
> then her lungs filled.  She was put in ICU, heavily sedated and had
> breathing help.  Early Sunday morning our son called and was in tears,
> she was given a less than 50% chance of survival.  So by mid morning
> we were heading for Asheville.
>
> I had spent the last two weeks in California getting my little pickup
> and a backup generator.  I left Sunnyvale on Thursday morning heading
> east and onto a miserable trip.  I had to buy four tires, take a tow
> truck ride, fight with the spare tire carrier in deep dust, and was
> the second person to come upon a nasty accident.  All in all not a
> trip to repeat.  I arrived home late Saturday night and headed east
> mid Sunday morning.
>
> She has been steadily improving all week and today they took her off
> sedation and breathing assistance.  She came around and this evening
> was able to talk with us and may be taken out of ICU tomorrow.
> Sometime in the next 7 to 10 days she will have an operation on her
> Colon.
>